Child with Rare Disease Flies to Life-Changing Care

September 22, 2021

Fighting a Rare Disease

At two years old, Zeq weighed only 19 pounds and was severely malnourished. Doctors thought he had food allergies. Kristine disagreed; it was impossible to have allergies to every food. She drove from their Virginia Beach home to Baltimore, Maryland, hoping that another doctor could help her son. “We needed a fresh set of eyes,” she said. 

At the hospital in Baltimore, an immunologist diagnosed Zeq with eosinophilic esophagitis, or EoE. Eosinophilic esophagitis is a chronic immune system disease. It occurs when white blood cells build up in the esophagus and attack substances such as food. Complications include scarring and tearing of the esophagus, vomiting, and severe weight loss. 

Volunteer Pilots to the Rescue

After learning of Zeq’s diagnosis, Kristine went to some internet forums that she had regularly participated in and asked if there was anyone who could help get them back and forth to Baltimore. She got an answer: Mercy Medical Angels' volunteer pilot program. 

 

Mercy Medical Angels' volunteer pilot program has provided free flights for Kristine and Zeq for many years. Many of the missions have been flown by Richard Linsenbach. Richard served in the U.S. Air Force before joining the nonprofit as a volunteer pilot. “I expected Zeq to be weak and sickly,” Richard said. Instead, the boy was curious, energetic, and observant – as if illness had no hold on him. 

 

Richard had to deal with one unexpected complication before the trip. News companies tried to pressure him into letting reporters come, but he adamantly refused. Having non-medical passengers on the plane would be unsafe, and it would put unnecessary pressure on a family that was already undergoing a lot of stress.


On the flight to Baltimore, they encountered some turbulence. Kristine clutched her seat, but Zeq appeared unfazed, cheering “Clouds, clouds, clouds!” Then, when Zeq and his family arrived at their home airport in Norfolk, the airport employees literally rolled out a red carpet. 

 

Kristine is grateful to the volunteer pilots. “They’re another part of the family.” 


Bright Future

Zeq is now a healthy young boy. He enjoys basketball, soccer, and riding bikes. When a classmate has a birthday and brings cupcakes, he is no longer left out. Twice a year, he sees a doctor for a check-up. The medical community has some of his DNA to research cures for EoE. His journey demonstrates power in an unexpected way – some may even call him a superhero! 

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